My Husband Is Not Lazy

Suppose you know a man who doesn’t have a paying job (and isn’t looking for one), who gets up late, goes to bed early, and often spends a good deal of his waking hours lying on the couch; a man who doesn’t always get his share of the household work done on time; a man who frequently isn’t available if you need a volunteer.

What would you think of him?

"On 29 October 1941 the 53rd Brigade (18th Division) embarked on the Polish troop carrier 'Sobieski' at Gourock in Scotland, to sail for an unknown destination (Egypt). It arrived at Halifax, Nova Scotia, on 8 Art.IWMART1574619

Here’s the thing: that man is my husband (aka The Caped Gooseberry). And I think very highly of him. Because he isn’t lazy; he has Chronic Fatigue Syndrome (CFS).

And unfortunately, a lot of people seem to think that unless you’re visibly ill, you must be a hypochondriac, a malingerer, or just plain lazy. “It’s all in your head.” Well, so is a brain tumour, and who would tell someone with cancer that they just need to pull themselves together?

There are two particularly frustrating reactions to my husband’s illness. One is the suggestion that he just needs to try [insert pet vitamin/mineral/other here] or getting more exercise, or self-hypnosis, or… As though being cripplingly unwell for years at a time only happened to people who didn’t think to try a herbal remedy, or eat lots of oranges.

Evidence of Toronto people

The second is the suggestion that he’s only ill – or pretending to be – because he prefers it to work. Which isn’t true. My husband does a larger share of the housework than a great many able-bodied men (although, to be scrupulously fair, they’re more likely to spend hours each day at a paying job). He’s worked when his health has allowed it, to the extent that he could, and he gets very frustrated when his energy levels force him to stop work.

He could just go on a benefit and lie in bed all day watching TV, but he doesn’t. He doesn’t even spend all day in his jammies (which, I must admit, I would be very tempted to do in his place). He dresses well, even if that’s the only thing he has the energy to do that day. And when he can, he works – on programming, audio-book narration, or other projects – even though the work is unpaid.

The thing is, the Caped Gooseberry doesn’t look sick, apart from an occasional tendency to resemble a tomb effigy when at rest.

St-Denis Heinrich-II

So it’s easy for people to assume that he isn’t really that unwell. Easy to assume that if they see him out doing the grocery shopping or going to church, he must be all right. They don’t see the rest of the day spent lying down to make up for it. They don’t see him when he’s too tired to leave the house, or too tired to even sit at the table and chew.
In some ways, it’s an invisible disorder, because not only are the symptoms frequently not visible, the sufferers often ‘disappear’ as well.

But Chronic Fatigue Syndrome (also known as myalgic encephalomyelits/ME and chronic fatigue immune dysfunction syndrome/CFIDS) is a very real illness.
According to Wikipedia, symptoms may include “malaise after exertion; unrefreshing sleep, widespread muscle and joint pain, sore throat, headaches of a type not previously experienced, cognitive difficulties, chronic and severe mental and physical exhaustion…. muscle weakness, increased sensitivity to light, sounds and smells, orthostatic intolerance, digestive disturbances, depression, painful and often slightly swollen lymph nodes, cardiac and respiratory problems.”

General Thaddeus Kosciusko by Benjamin West

And then, with classic understatement, the article adds “Quality of life of persons with CFS can be extremely compromised.”

And there are few things worse than having your life maimed by illness, only for people to treat you as though you’re a slacker, a bludger, or just hopelessly inept. As though you aren’t really suffering, and if you are, it’s your fault.

Of course, most people are too polite to suggest to the Caped Gooseberry that he just needs to pull himself together and get on with it. So they suggest it to me, instead. Because there’s nothing offensive in telling a woman that you think her husband’s a lazy slacker who pretends to be sick to avoid having to get a job like a real man.

'Around the Moon' by Bayard and Neuville 04

Seventeen million people are said to have Chronic Fatigue Syndrome. That’s a lot of people being looked down on by people who don’t know their circumstances, and, sadly, by many of those who do.

So please, before we judge the person doing the grocery shopping in their pyjamas, or the person whose house or yard isn’t up to neighbourhood standards, please, let’s remember that we don’t know what else they’re going through, and they don’t need the weight of our condemnation added to the burdens they’re already bearing.

Rx for Readers

Are your humours out of balance? You could be cupped, or bled, or purged. You could consider emetics, or even dally with leeches. Or perhaps you could just read a book instead.

Myself, I always go for the book.

Karoly Ferenczy 22

I don’t know when I realized that I self-medicate with books. Possibly when I wrote this post, or possibly this one.
Or possibly when I read one of the new editions of P.G. Wodehouse and noted that his works were described as “cheaper than Prozac, and 100 per cent more effective.”

Here are a few of my favourite prescriptions.

Feeling blue? In a brown study? Life just drab and grey? Take a course of P.G. Wodehouse. Read anything he wrote: a novel, a preface, even the account of his experiences being interned by the Nazis. Uniformly hilarious.
Overdoses can cause symptoms similar to intoxication; possible side effects include aching stomach muscles and snorted drinks.

Original caption- A couple of hearty characters roar at a good joke Art.IWMARTLD135c

Are you jaded by the harried complexities of urban life, the rush, the pollution, the noise? Try the old classic Heidi, by Johanna Spyri. Warning: may cause uncontrollable urge to move to Switzerland.

Plenty of housework to do, but don’t fancy drudging it? Monica Dickens’ autobiographical caper One Pair of Hands should get you in the mood – or, for a more fictional twist, try the exploits of Lucy Eyelesbarrow in Agatha Christie’s 4:50 from Paddington.

Edouard John Mentha Lesendes Dienstmädchen in einer Bibliothek

Most of Agatha Christie’s works are ideal for when you are in need of something warm and comforting to curl up in. They’re not mindless junk, but neither are there nasty surprises. (Not unless you read Endless Night.) Plenty of unexpected twists, though – I’ve read them over and over again and I still sometimes miss whodunnit.

Also excellent for the early stages of recuperation are Patricia Wentworth’s Miss Silver novels. There is no-one I would rather have in my sick-room than this quietly knitting, Tennyson-quoting gentlewoman detective, ahem, private enquiry agent.

Edwardian lady writing (6908558900)

Are you oppressed? By life, by work, by circumstance? If, like the man trapped by the date tree which grew under him as he slept, you are unable to alter circumstances to your will; adapt your will to circumstances instead: try being heroically or nobly oppressed, for variety.
Nicholas Nickleby (by Monica’s great-granddaddy Charles) would be delighted to be of assistance; or Part One of Louisa May Alcott’s Little Women may serve the turn instead.

Like Hamlet, do you find life “weary, stale, flat and unprofitable”? Try Terry Pratchett for some “interesting times.”

Edwin Booth as Hamlet lithograph

Does time weigh heavily on your hands? Do the days bore you by their prosaic banality? The ideal solution is J.R.R. Tolkien’s epic, The Lord of the Rings – the ultimate reason to “not speak slightingly of the three-volume novel,” as Miss Prism warns her charge.

What home remedies do you have on your bookshelf? I’d love to hear!

Whistle While You Work

…and wait for Disney’s copyright lawyers to come after you. Safer to sing a happy working song – actually, to be on the safe side, better to just work in silence.

The Grimm children doing the housework. 8d29103v

Scratch that! Working songs have been used as long as there have been work and songs, i.e. since before Mr Disney was born or thought of. Whether you’re a sailor, a farmer, or just a general labourer, work songs are there, as Wikipedia puts it, “to increase productivity while reducing feelings of boredom.” Hear hear. Or rather, sing, sing.

Of course, traditional work singing, like traditional work, was generally communal. You’ll Never Work Alone. (Might as well get Rodgers & Hammerstein: An Imagem Company on my back while I’m at it…) Unfortunately for us, most communal work these days is done in workplaces whose managements frown on their staff joining in traditional call-and-response songs. Can’t think why.

“The printer’s gone and jammed again,
Haven’t had a break since God knows when;”
“Pay cuts and paper cuts,
Another day at the office!”

“Fifteen years since I’ve had a raise,
Manager thinks he owns this place;”
“Pay cuts and paper cuts,
Another day at the office!”

'Sentimental Ballad' by Grant Wood, 1940

So most of your opportunities for work-singing, if you’re anything like me, are solitary: housework, and perhaps gardening if you’re not worried about the neighbours’ opinions.

You can, of course, sing along with recorded music – companies have made good money from packaging music as suitable for doing housework to – but this has its limitations. Housework often takes you out of the room, and vacuums etc can drown the music out. Unless you play it really loud, and then you are one of those neighbours. Taking your music with you is a possibility if you don’t mind the risk of you or your device getting fried, water being another high-frequency element of housework. Thank you, but no.

This is where Ye Olde Work Song comes into its own. The only real criterion for a work song is that you know how it goes, although it does help if it sounds all right a cappella. You can sing anything – even if you can’t really sing – because, like singing in the shower, housework singing is legally privileged. (For a given value of “legally”. After all, when was the last time Noise Control was called on someone wearing a frilly apron?) Any neighbours within earshot might even enjoy the free concert. As they say, how do you know you’re a talented shower-singer? Applause under the bathroom window.

Singing in the Bath (2130531035)

What to sing is a very individual choice. Myself, I like old hymns and spirituals. There is nothing that goes so well with scrubbing a toilet than I Am A Poor Wayfaring Stranger, and the acoustics aren’t half bad either. Other favourites include: The Lord of the Dance; God Is Working His Purpose Out, (which I first encountered in the 2002 film version of Nicholas Nickleby and hunted all over for before finding it in Hymns Ancient and Modern); It Is Well With My Soul, (doing both parts in the echoes); and that perennial favourite of Sir Howard Morrison‘s, How Great Thou Art.

Interesting bit of trivia: the Maori verse sung in said version of HGThA is not a translation of any of the English verses, but a bit pinched from Abide With Me – a hymn which goes very well with vacuum-cleaner accompaniment. Vacuum cleaners love minor keys.

So, do you sing as you work? Any recommendations?